Celine Dion Opens Up About Health Battle in Upcoming Documentary
In a heartfelt revelation, iconic Canadian singer Celine Dion has disclosed her ongoing struggle with a rare and incurable neurological disorder known as Stiff Person Syndrome (SPS). The 56-year-old superstar shared her emotional journey in the trailer of her upcoming Amazon Prime documentary, “I Am Celine Dion,” set to premiere on June 25.
CELINE DION SHARES HEALTH STRUGGLE IN DOCUMENTARY TEASER
The teaser provides an intimate glimpse into Dion’s life, revealing the raw and painful reality of her health battle. In a poignant moment captured on film, Dion admits, “I’ve been diagnosed with a very rare neurological disorder, and I wasn’t ready to say anything before. But I’m ready now.” Fighting back tears, the six-time Grammy award winner confessed her longing for the stage, from which she stepped back in late 2022. “It’s not hard to do a show, it’s hard to cancel a show,” she expressed. “I’m working hard every day, but I have to admit, it’s been a struggle. I miss it so much, the people, I miss them.” In a heartening note, she added, “If I can’t run, I’ll walk. If I can’t walk, I’ll crawl. But I won’t stop.”
FIGHTING AN INCURABLE ILLNESS
Despite the relentless nature of her illness, Dion remains resolute in her fight. Her loved ones have revealed the challenges in finding effective medication to manage her symptoms and pain. Yet, Dion’s determination remains undeterred. In an interview with Vogue France, she candidly shared, “I haven’t beat the disease, as it’s still within me and always will be. Five days a week, I undergo athletic, physical, and vocal therapy. I work on my toes, my knees, my calves, my fingers, my singing, my voice.” Dion first began experiencing symptoms of Stiff Person Syndrome in 2008, with her voice spasming during performances being one of the initial indicators. Muscle stiffness also plagued her, particularly during her Las Vegas residency, which concluded in 2019. Reflecting on her symptoms, she said, “I started having a hard time walking. I was holding on to things.”
STIFF PERSON SYNDROME: SYMPTOMS AND MANAGEMENT
Stiff Person Syndrome is a rare, progressive neurological disorder characterized by severe muscle stiffness in the torso, arms, and legs. According to the National Institute of Neurological Disorders, the condition is incurable and significantly more common in women. It is often associated with autoimmune diseases such as type I diabetes, thyroiditis, vitiligo, and anemia. While there is no known cure for SPS, various medications can help manage the symptoms. Muscle relaxants, anticonvulsants, and immunotherapy are among the treatments that may provide some relief for those affected.
LOOKING AHEAD
Celine Dion’s bravery in sharing her battle with SPS is a testament to her strength and resilience. Through her documentary, she aims to raise awareness about this rare condition while inspiring others facing similar challenges. Despite the difficulties she faces, Dion’s unwavering spirit shines through, as she continues to fight and adapt to her new reality. Her fans eagerly await the release of “I Am Celine Dion,” which promises to be an emotional and inspiring look at the life of a beloved superstar who refuses to let her illness define her.
